By Ali Gutierrez My name is Ali Gutierrez, and I’m a registered nurse, a PhD student, and the daughter of a woman who died from complications of dermatomyositis (DM) in…
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Living in the present
By Kristin Hicks Kristin Hicks’s husband, Troy, lives with inclusion body myositis. Thank you to Kristin for sharing this snippet of life with myositis. What is a fun fact about…
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Rare disease research depends on you
By Theresa Curry If 300 million people had the same disease, scientists in every country would be rushing to find a cure, and it would be easy to enroll patients…
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MyoCon 2025: Melissa’s List
We’re excited to be in Dallas this year for the first time ever, hosting MyoCon: TMA’s Global Myositis Patient Conference at the Sheraton Dallas Hotel. We hope you can join…
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Seeing the other side: On being a clinical trial participant
By Martha Arnold Before I retired, I worked in the pharmaceutical industry, helping drug development teams make their strongest case to the FDA for approval of their compounds across a…
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