https://www.myositis.org/blog/seeing-the-other-side-on-being-a-clinical-trial-participant/ Wed, 10 Sep 2025 18:05:07 +0000 hourly 1 https://wordpress.org/?v=6.8.3 https://www.myositis.org/blog/seeing-the-other-side-on-being-a-clinical-trial-participant/#comment-16957 Wed, 10 Sep 2025 18:05:07 +0000 https://www.myositis.org/?p=26634#comment-16957 Thanks for your info on trials; I had hoped to get on one but after what’s involved I realize it’s not for me. I’m about 4 years living with IBM. Many Dr’s, PT & my own experiments with exercising. As of my last meet with my neurologist I’m in the maintaining mode, heavy workout 3 days a week. Overall what’s most disturbing is how small my world has become: not walking any distance, painful playing my piano, & lack of traveling for fear of falling which has happened a few times. Ug! But my attitude is fine because there’s no alternative. My research/quest is to find out how I got this or what caused my IBM. Thanks again for your info, stay safe ! frank

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