Comments for The Myositis Association https://www.myositis.org/ Mon, 20 Oct 2025 14:27:58 +0000 hourly 1 https://wordpress.org/?v=6.8.3 Comment on CAR T: A promising new frontier for myositis treatment by Linda Kobert https://www.myositis.org/blog/car-t-a-promising-new-frontier-for-myositis-treatment/#comment-17065 Mon, 20 Oct 2025 14:27:58 +0000 https://www.myositis.org/?p=19693#comment-17065 In reply to Cristina T.

Terific! We wish your family all the best.

]]> Comment on CAR T: A promising new frontier for myositis treatment by Cristina T https://www.myositis.org/blog/car-t-a-promising-new-frontier-for-myositis-treatment/#comment-17064 Mon, 20 Oct 2025 04:36:26 +0000 https://www.myositis.org/?p=19693#comment-17064 ]]> Thank for your reply. I feel better with that second and aligned opinion 😊

]]> Comment on Finding the Good by Wes https://www.myositis.org/blog/finding-the-good/#comment-17051 Thu, 16 Oct 2025 15:49:15 +0000 https://www.myositis.org/?p=27455#comment-17051 Thank you, Jacqui, for sharing your story with such honesty and strength. It takes real courage to move from the confusion and fear of a sudden illness to arranging treatment, finding community, and choosing to stay hopeful.

What stood out most is how you’re not letting this disease define you — you’re actively seeking knowledge, attending therapies, leaning on support systems, and focusing on the things within your control. That mindset of looking for good in every experience is powerful and rare.

Your journey reminds me that even in hardship, there is agency and light. I’m inspired by your resilience and positivity, and grateful you’re using your voice to educate others about something many don’t yet understand. Keep going — what you’re doing matters.

]]> Comment on MyoCon: We are not alone by Dr parul madia https://www.myositis.org/blog/myocon-we-are-not-alone/#comment-17048 Sat, 11 Oct 2025 02:48:43 +0000 https://www.myositis.org/?p=28028#comment-17048 Thank you Linda

]]> Comment on How to qualify for Social Security Disability benefits with myositis by Linda Kobert https://www.myositis.org/blog/how-to-qualify-for-social-security-disability-benefits-with-myositis/#comment-17046 Thu, 09 Oct 2025 14:22:33 +0000 https://www.myositis.org/?p=10421#comment-17046 In reply to Johnny Bustillos jr.

Hello Johnny, We’re so sorry to hear your difficult story. We suggest you contact the Social Security Administration to see if you qualify for benefits. https://www.ssa.gov/disability

]]> Comment on How to qualify for Social Security Disability benefits with myositis by Johnny Bustillos jr https://www.myositis.org/blog/how-to-qualify-for-social-security-disability-benefits-with-myositis/#comment-17045 Thu, 09 Oct 2025 02:28:11 +0000 https://www.myositis.org/?p=10421#comment-17045 I was diagnosed with Idiopathic orbital myosiyis in the late 90s, I was on 800mg of prednisone 3x a day for over a year…my eye site has gotten worse and my headaches are unbearable, the pain in my eye is excruciating. I keep my right eye closed most of the day because the sunlight makes it worse. Would I qualify for disability ?

]]> Comment on Finding the Good by Neiela Hopkins https://www.myositis.org/blog/finding-the-good/#comment-17044 Wed, 08 Oct 2025 22:45:39 +0000 https://www.myositis.org/?p=27455#comment-17044 This is truly an incredibly powerful and inspiring story. Thank you for sharing your journey with such honesty and courage. I really admire how you turned journey into an opportunity for growth and resilience. Your determination to stay positive and focus on healing is inspiring. I’m so glad to hear your treatment is going well and that you’ve found support through The Myositis Association. Wishing you much love, continued strength, progress, and peace on your path forward.

]]> Comment on Finding the Good by Renee Delaney https://www.myositis.org/blog/finding-the-good/#comment-17043 Wed, 08 Oct 2025 18:12:05 +0000 https://www.myositis.org/?p=27455#comment-17043 Thank you for sharing your story. I’ve always looked at you as a powerful, intelligent and caring woman. If anyone would do their research it would be you. Wishing you continued strength in your health journey and sending love to you and your family.

]]> Comment on Finding the Good by Fran https://www.myositis.org/blog/finding-the-good/#comment-17042 Wed, 08 Oct 2025 18:09:40 +0000 https://www.myositis.org/?p=27455#comment-17042 Jacqui you inspire me with your story. You are an overcomer. I am happy we kept in contact . . I truly appreciate the positive words you send me . God Bless and I will be praying for you. He is a healer .

]]> Comment on Finding the Good by Angela P. https://www.myositis.org/blog/finding-the-good/#comment-17041 Wed, 08 Oct 2025 18:02:03 +0000 https://www.myositis.org/?p=27455#comment-17041 ]]> Thank you for always trying to stay positive and finding the silver lining in every situation. Hoping the experiences you share with the community will encourage those who need it to keep pushing forward in finding a new balance in life. Always looking forward to your daily dose of positivity!💛

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