Comments on: TMA’s Find a Doctor tool just got better! https://www.myositis.org/blog/tmas-find-a-doctor-tool-just-got-better/ Thu, 28 Aug 2025 22:18:44 +0000 hourly 1 https://wordpress.org/?v=6.8.3 By: Grant https://www.myositis.org/blog/tmas-find-a-doctor-tool-just-got-better/#comment-16899 Thu, 28 Aug 2025 22:18:44 +0000 https://www.myositis.org/?p=13985#comment-16899 In reply to Jane Yaussy.

Dr. Register at the University of Utah is a great option.
Everything you need is in one location at the University of Utah.
Spent the last year there after being diagnosed with SINAM.
Super helpful and up to date on latest issues related to all MYOSITIS conditions.

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By: Sharon Smith https://www.myositis.org/blog/tmas-find-a-doctor-tool-just-got-better/#comment-16292 Fri, 09 May 2025 15:35:43 +0000 https://www.myositis.org/?p=13985#comment-16292 Theerapol Prasertsuntarasai, MD – rheumatologist
West Texas Arthritis Clinic – Lubbock, Texas
https://wtxarthritis.com/

He told me that his area of research is dermatomyositis. I’ve seen him twice and like him much more than the other two rheumatologists that I’ve seen in Lubbock. He is much more thorough and kind. Everyone calls him Dr. P – I have no idea how to pronounce his last name or where he is from, but he doesn’t have an accent – easy to understand.

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By: Linda Kobert https://www.myositis.org/blog/tmas-find-a-doctor-tool-just-got-better/#comment-15490 Wed, 28 Aug 2024 23:51:59 +0000 https://www.myositis.org/?p=13985#comment-15490 In reply to Kimberly.

Kimberly, you can use our Find a Doctor tool https://www.myositis.org/patient-support/find-doctor/
We also suggest connecting with others in your area through our regional support group network and asking about care providers. This is the Michigan support group: https://www.myositis.org/patient-support/support-groups/find-support-group/michigan/
You can also get lots of great information from others who live with myositis by connecting with any of our online support or affinity groups. You can find out when meetings are happening and get the zoom links here: https://www.myositis.org/calendar/

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By: Kimberly https://www.myositis.org/blog/tmas-find-a-doctor-tool-just-got-better/#comment-15489 Wed, 28 Aug 2024 21:57:01 +0000 https://www.myositis.org/?p=13985#comment-15489 How do I find a doctor that’s more than experienced for necrotising myositis? I live in Michigan

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By: Linda Kobert https://www.myositis.org/blog/tmas-find-a-doctor-tool-just-got-better/#comment-14872 Sun, 10 Mar 2024 17:08:38 +0000 https://www.myositis.org/?p=13985#comment-14872 In reply to Jade Henley.

Hello Jade, we are looking into whether our Find a Doctor tool can help identify other healthcare providers besides doctors. Meanwhile, you should be able to find providers of other specialties, including neurologists, pulmonologists, dermatologists, etc. You may need to change the condition under which you are looking. For example, if you want a pulmonologist, try looking under interstitial lung disease.

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By: Jade Henley https://www.myositis.org/blog/tmas-find-a-doctor-tool-just-got-better/#comment-14871 Sun, 10 Mar 2024 16:42:27 +0000 https://www.myositis.org/?p=13985#comment-14871 We need recommendations for speech therapy and pulmonologist. The speech therapist is very unfamiliar with this Dermamyositis. Is there anywhere we can find those recommendations on this site or is it just Rheumatology?

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By: Linda Kobert https://www.myositis.org/blog/tmas-find-a-doctor-tool-just-got-better/#comment-14820 Thu, 15 Feb 2024 15:56:35 +0000 https://www.myositis.org/?p=13985#comment-14820 In reply to John Wolfenden.

John, do you have myositis? What form? And where do you live?

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By: John Wolfenden https://www.myositis.org/blog/tmas-find-a-doctor-tool-just-got-better/#comment-14819 Thu, 15 Feb 2024 15:31:19 +0000 https://www.myositis.org/?p=13985#comment-14819 I had a terrible muscle cramps and bruising in my thighs. Thought I would die it was so painful. Can’t find a doctor who has any idea of the disease. Is this normal symptoms what can I expect going forward

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By: Jane Yaussy https://www.myositis.org/blog/tmas-find-a-doctor-tool-just-got-better/#comment-14818 Wed, 14 Feb 2024 05:01:46 +0000 https://www.myositis.org/?p=13985#comment-14818 Hello ,
I have been diagnosed with MCTD . It has turned into Dermatomyositis, but I need a muscle biopsy to confirm. My Rheumatologist has not been helpful . Is there anyone in Boise , Idaho specialized in Myositis who could perform a muscle biopsy . Or in Seattle or Salt Lake City ?

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