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DTSTART;TZID=America/New_York:20251103T183000
DTEND;TZID=America/New_York:20251103T200000
DTSTAMP:20251022T060248
CREATED:20250605T143723Z
LAST-MODIFIED:20250605T203819Z
UID:10001122-1762194600-1762200000@www.myositis.org
SUMMARY:TMA New Jersey Myositis Support Group Meeting
DESCRIPTION:Register Here \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nJoin the TMA New Jersey Myositis Support Group: Connect\, Learn\, and Find Support \nThe TMA New Jersey Myositis Support Group provides a welcoming and supportive environment for individuals living with myositis. Meeting every other month at 6:30 PM ET\, this group offers a chance to connect with others who understand the challenges of living with conditions like Inclusion Body Myositis (IBM)\, Polymyositis (PM)\, Dermatomyositis (DM)\, Necrotizing Myopathy (NM)\, and more. Whether you’re newly diagnosed or have been managing myositis for years\, this group is a great place to share experiences\, learn from others\, and access helpful resources. \nThe support group is a place to reduce feelings of isolation\, find strength through shared experiences\, and gain insights into managing daily challenges. Together\, we can build a community that understands and supports each other. \nWhen?\nThe third Monday of every other month at:\n6:30 PM ET \nWhere?\nTMA New Jersey Myositis Support Group (virtual meeting details provided upon registration) \n\n\nAbout the Leader: Colleen Layton\nYou may have seen Colleen Layton on TMA webinars or at our International Annual Patient Conference. A retired nurse who was diagnosed with necrotizing myopathy ten years ago\, Colleen has been a dedicated volunteer for many years. Despite the challenges of her disease\, she remains deeply involved in her passion for horse racing and is excited to share how she has adapted this hobby to her illness. \nColleen and her husband John have two sons and live in New Jersey. With her extensive background in healthcare and personal experience with myositis\, Colleen brings both knowledge and compassion to her leadership of the New Jersey Myositis Support Group. She is thrilled to serve those living with myositis in her community and help others navigate their own journeys with strength and resilience. \nThank you\, Colleen\, for your ongoing commitment to supporting others living with myositis! \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n  \n 
URL:https://www.myositis.org/event/tma-new-jersey-myositis-support-group-meeting-10/
LOCATION:https://www.myositis.org/event/tma-new-jersey-myositis-support-group-meeting-10/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251104T180000
DTEND;TZID=Europe/Paris:20251104T190000
DTSTAMP:20251022T060248
CREATED:20251012T043100Z
LAST-MODIFIED:20251012T043100Z
UID:10001895-1762279200-1762282800@www.myositis.org
SUMMARY:Demandez à l'expert édition française
DESCRIPTION:Inscrivez-vous ici \nJoignez-vous à nous pour une séance dynamique et informative destinée aux personnes francophones touchées par la myosite\, aux proches aidants et aux professionnels. Valérie LeClair\, MD et Fiona Ratkoff\, défenseures et spécialistes expérimentées\, partageront des stratégies pratiques\, répondront à vos questions et discuteront des moyens d’accéder aux soins\, au soutien et aux ressources dans les communautés francophones. Que vous veniez de recevoir un diagnostic ou que vous naviguiez dans un établissement de soins de longue durée\, cette séance offre un espace accueillant pour acquérir des connaissances et établir des liens avec d’autres personnes qui comprennent le parcours. Q&R en direct inclus. L’inscription est gratuite. Inscrivez-vous dès maintenant pour réserver votre place !
URL:https://www.myositis.org/event/demandez-a-lexpert-edition-francaise/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251105T120000
DTEND;TZID=America/New_York:20251105T130000
DTSTAMP:20251022T060248
CREATED:20251012T043623Z
LAST-MODIFIED:20251016T133243Z
UID:10001896-1762344000-1762347600@www.myositis.org
SUMMARY:Ask the Expert featuring Dr. Suur Biliciler
DESCRIPTION:Register Here \nJoin us for an informative and supportive Ask the Expert webinar featuring Dr. Suur Biliciler\, a specialist in neuromuscular disorders and myositis care. This session will explore key aspects of diagnosis\, treatment options\, and symptom management for individuals affected by myositis. Dr. Biliciler will share her clinical insights and answer audience questions in real time making this an excellent opportunity to learn from an expert and engage directly on topics that matter most to you. Registration is free and open to patients\, caregivers\, and clinicians. Register now to reserve your spot!
URL:https://www.myositis.org/event/ask-the-expert-featuring-dr-suur-biliciler/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251105T200000
DTEND;TZID=America/New_York:20251105T213000
DTSTAMP:20251022T060248
CREATED:20250605T143731Z
LAST-MODIFIED:20250724T235209Z
UID:10001329-1762372800-1762378200@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda will receive the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2025-11-05/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251106T183000
DTEND;TZID=America/New_York:20251106T203000
DTSTAMP:20251022T060248
CREATED:20250605T143743Z
LAST-MODIFIED:20250904T194239Z
UID:10001506-1762453800-1762461000@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-11-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/TMA-WOCAG-WEBSITE-BANNER.jpg
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-11-06/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20251108T120000
DTEND;TZID=America/Denver:20251108T133000
DTSTAMP:20251022T060248
CREATED:20250605T143706Z
LAST-MODIFIED:20250605T203917Z
UID:10001047-1762603200-1762608600@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:TMA Colorado Myositis Support Group has reactivated and meets on the second Saturday of each month at noon Mountain Time! \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming \nAnyone can join his meetings\, Colorado resident or not. The first meeting will be October 12 at noon MT and you can register here! \n 
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-14/
LOCATION:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-14/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251108T120000
DTEND;TZID=America/New_York:20251108T140000
DTSTAMP:20251022T060248
CREATED:20250605T143724Z
LAST-MODIFIED:20250605T204018Z
UID:10001126-1762603200-1762610400@www.myositis.org
SUMMARY:TMA North & South Carolina Myositis Support Group Meeting (HYBRID)
DESCRIPTION:Register Here \nJoin the TMA North & South Carolina Myositis Support Group: Connect\, Learn\, and Find Support \nThe TMA North & South Carolina Myositis Support Group offers a hybrid meeting format\, combining both in-person and virtual options\, for individuals living with myositis in the Carolinas. Meeting every three months on the second Saturday at 12:00 PM ET\, this group provides a supportive environment to connect with others\, share experiences\, and access valuable resources. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, foster a sense of community\, and offer guidance for navigating the challenges of living with autoimmune diseases like Inclusion Body Myositis (IBM)\, Polymyositis (PM)\, Dermatomyositis (DM)\, Necrotizing Myopathy (NM)\, and more. \nWhen?\nEvery three months on the second Saturday at 12:00 PM ET \nWhere?\nIn-person: Lake Wylie Lutheran Church\n2906 Highway 160 W\, Fort Mill\, SC 29708\nVirtual: Meeting details provided upon registration \nJoin us to connect with others\, gain support\, and empower yourself in your myositis journey. We look forward to seeing you there!
URL:https://www.myositis.org/event/tma-north-south-carolina-myositis-support-group-meeting-hybrid-4/
LOCATION:Lake Wylie Lutheran Church\, 2906 Highway 160 W\, Fort Mill\, SC\, 29708\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T120000
DTEND;TZID=America/New_York:20251118T133000
DTSTAMP:20251022T060248
CREATED:20250731T233534Z
LAST-MODIFIED:20251008T164904Z
UID:10001627-1763467200-1763472600@www.myositis.org
SUMMARY:TMA WomenwithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \nRegister here.
URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group-meeting/2025-11-18/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/Women-with-IBM-General-Flyer-2023.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251121T170000
DTEND;TZID=America/Los_Angeles:20251121T183000
DTSTAMP:20251022T060248
CREATED:20250605T143747Z
LAST-MODIFIED:20250731T182943Z
UID:10001567-1763744400-1763749800@www.myositis.org
SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-11-21/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-11-21/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251122T100000
DTEND;TZID=America/Chicago:20251122T113000
DTSTAMP:20251022T060248
CREATED:20250605T143746Z
LAST-MODIFIED:20250725T234234Z
UID:10001448-1763805600-1763811000@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Melissa Rumpf \n\n\n\n\n\n \nHello\, my name is Melissa Rumpf and I was diagnosed with IBM in 2017.  I feel very fortunate to have found TMA early in my diagnosis as they have been instrumental in helping me navigate this disease.   \n\n\n\nI have attended three (3) in-person TMA International Patient Conferences and many zoom conferences and meetings throughout the years (can’t wait for Dallas this year)!  Meeting other myositis patients and being able to share information\, our struggles and our positives with each other has been life changing for me.  I have learned so much from TMA and others weathering the ups and downs of myositis.  \n\n\n\nPrior to medically retiring in 2019\, I was a Communications Supervisor with the Las Vegas Police Department where I spent 28 years helping others.  So being part of TMA and helping others is a strong passion of mine.   \n\n\n\nMy husband is my “Rock” who helps keep me going.  We exercise 3 times weekly to keep my mobility.  My passion is traveling so we take vacations as often as we can – it keeps me going mentally and physically! \n\n\n\n“The question isn’t who is going to let me; it’s who is going to stop me”.  We all must keep up the fight! \n\n\n\nI’m looking forward to meeting you at our TMA Northeast Texas meetings! \n\n\n\nSincerely\, Melissa \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-11-22/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-11-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251122T103000
DTEND;TZID=America/New_York:20251122T113000
DTSTAMP:20251022T060248
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10001389-1763807400-1763811000@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2025-11-22/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251202T180000
DTEND;TZID=America/Chicago:20251202T200000
DTSTAMP:20251022T060248
CREATED:20250605T143721Z
LAST-MODIFIED:20250626T153922Z
UID:10001111-1764698400-1764705600@www.myositis.org
SUMMARY:TMA Minnesota Myositis Support Group
DESCRIPTION:Register Here \nJoin the TMA Minnesota Myositis Support Group: Connect\, Share\, and Find Support \nThe TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect\, share experiences\, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT\, this group provides a valuable opportunity to engage with others who truly understand the challenges of living with myositis. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, offer resources\, and build a sense of community. By sharing stories and learning from each other\, you’ll gain valuable insights and feel empowered to navigate your myositis journey with support from others who understand. \nWhen?\nFirst Tuesday of every two months at:\n6:00 PM CT \nJoin us to decrease loneliness\, access helpful resources\, and find strength in the power of community. We look forward to connecting with you!
URL:https://www.myositis.org/event/tma-minnesota-myositis-support-group-6/
LOCATION:https://www.myositis.org/event/tma-minnesota-myositis-support-group-6/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251202T180000
DTEND;TZID=America/Chicago:20251202T200000
DTSTAMP:20251022T060248
CREATED:20250605T143721Z
LAST-MODIFIED:20250805T180202Z
UID:10001808-1764698400-1764705600@www.myositis.org
SUMMARY:TMA Minnesota Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA Minnesota Myositis Support Group: Connect\, Share\, and Find Support \nThe TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect\, share experiences\, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT\, this group provides a valuable opportunity to engage with others who truly understand the challenges of living with myositis. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, offer resources\, and build a sense of community. By sharing stories and learning from each other\, you’ll gain valuable insights and feel empowered to navigate your myositis journey with support from others who understand. \nWhen?\nFirst Tuesday of every two months at:\n6:00 PM CT \nJoin us to decrease loneliness\, access helpful resources\, and find strength in the power of community. We look forward to connecting with you! \nRegister Here
URL:https://www.myositis.org/event/tma-minnesota-myositis-support-group-4/2025-12-02/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Minnesota.jpg
ORGANIZER;CN="Lindsay Guentzel":MAILTO:Guentzel@myositis.org
LOCATION:https://www.myositis.org/event/tma-minnesota-myositis-support-group-4/2025-12-02/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251203T200000
DTEND;TZID=America/New_York:20251203T213000
DTSTAMP:20251022T060248
CREATED:20250605T143731Z
LAST-MODIFIED:20250724T235209Z
UID:10001330-1764792000-1764797400@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda will receive the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2025-12-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251204T183000
DTEND;TZID=America/New_York:20251204T203000
DTSTAMP:20251022T060248
CREATED:20250605T143743Z
LAST-MODIFIED:20250904T194239Z
UID:10001507-1764873000-1764880200@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-12-04/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/TMA-WOCAG-WEBSITE-BANNER.jpg
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-12-04/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251206T130000
DTEND;TZID=America/New_York:20251206T143000
DTSTAMP:20251022T060248
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001751-1765026000-1765031400@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-12-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-12-06/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251206T130000
DTEND;TZID=America/New_York:20251206T143000
DTSTAMP:20251022T060248
CREATED:20250801T201217Z
LAST-MODIFIED:20250801T201324Z
UID:10001691-1765026000-1765031400@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2025-12-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/03/Nationwide-3-1.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251210T010000
DTEND;TZID=America/Chicago:20251210T143000
DTSTAMP:20251022T060248
CREATED:20250605T143720Z
LAST-MODIFIED:20250605T204236Z
UID:10001105-1765328400-1765377000@www.myositis.org
SUMMARY:TMA Kansas & Western Missouri Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA Kansas & Western Missouri Myositis Support Group: A Community for Myositis Warriors \nThe TMA Kansas & Western Missouri Myositis Support Group is a welcoming space for individuals living with myositis. Meeting 3-4 times per year\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-kansas-western-missouri-myositis-support-group-meeting-4/
LOCATION:https://www.myositis.org/event/tma-kansas-western-missouri-myositis-support-group-meeting-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251211T120000
DTEND;TZID=America/New_York:20251211T130000
DTSTAMP:20251022T060248
CREATED:20251012T044452Z
LAST-MODIFIED:20251012T044452Z
UID:10001897-1765454400-1765458000@www.myositis.org
SUMMARY:Ask the Expert Speech-Language Pathology Edition
DESCRIPTION:Register Here \nJoin TMA for an interactive\, Ask the Expert Q&A with Dr. Kendrea Garand\, a board-certified specialist in swallowing and speech-language pathology.\nThis session will focus entirely on your questions about speech\, voice\, and swallowing challenges in myositis—how to recognize them\, when to ask for an evaluation\, and practical tips that help you eat\, drink\, and communicate more safely and confidently.\nBring your questions live or submit them in advance when you register.
URL:https://www.myositis.org/event/ask-the-expert-speech-language-pathology-edition/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20251213T120000
DTEND;TZID=America/Denver:20251213T133000
DTSTAMP:20251022T060248
CREATED:20250605T143707Z
LAST-MODIFIED:20250605T204328Z
UID:10001048-1765627200-1765632600@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:TMA Colorado Myositis Support Group has reactivated and meets on the second Saturday of each month at noon Mountain Time! \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming \nAnyone can join his meetings\, Colorado resident or not. The first meeting will be October 12 at noon MT and you can register here! \n 
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-15/
LOCATION:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T170000
DTEND;TZID=America/New_York:20251218T183000
DTSTAMP:20251022T060248
CREATED:20250605T143730Z
LAST-MODIFIED:20250605T204448Z
UID:10001150-1766077200-1766082600@www.myositis.org
SUMMARY:TMA Adelante! Un grupo de apoyo sobre miositis para hispanohablantes
DESCRIPTION:Registrese\n\n \n\nÚnete a TMA Adelante! – Una Comunidad de Habla Hispana Avanzando Juntos \n¡Adelante! es el primer grupo de afinidad de TMA diseñado para personas de habla hispana que viven con miositis y sus cuidadores. Fundado bajo la creencia de que\, a pesar de los desafíos de la enfermedad crónica\, todos podemos seguir avanzando\, este grupo ofrece un espacio de apoyo para hispanohablantes de todo el mundo para conectarse\, compartir experiencias y encontrar fortaleza en la comunidad. \nYa sea que busques orientación\, apoyo o simplemente un lugar para conectarte con otros que entienden tu camino\, TMA Adelante! está aquí para ayudarte. Las reuniones se realizan cada dos meses\, brindando una oportunidad constante para interactuar con otros que comparten el mismo idioma y experiencia. \n¿Cuándo?El tercer jueves de cada dos meses a las:5:00 PM ET | 4:00 PM CT | 3:00 PM MT | 2:00 PM PT \nÚnete a nosotros y sé parte de esta red dinámica y solidaria mientras avanzamos juntos. Esperamos darte la bienvenida a TMA Adelante! Grupo de Afinidad. \n\n \n \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-22/
LOCATION:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T170000
DTEND;TZID=America/New_York:20251218T183000
DTSTAMP:20251022T060248
CREATED:20250605T143730Z
LAST-MODIFIED:20250714T182448Z
UID:10001270-1766077200-1766082600@www.myositis.org
SUMMARY:TMA Adelante! Un grupo de apoyo sobre miositis para hispanohablantes
DESCRIPTION:Registrese\n\n \n\nÚnete a TMA Adelante! – Una Comunidad de Habla Hispana Avanzando Juntos \n¡Adelante! es el primer grupo de afinidad de TMA diseñado para personas de habla hispana que viven con miositis y sus cuidadores. Fundado bajo la creencia de que\, a pesar de los desafíos de la enfermedad crónica\, todos podemos seguir avanzando\, este grupo ofrece un espacio de apoyo para hispanohablantes de todo el mundo para conectarse\, compartir experiencias y encontrar fortaleza en la comunidad. \nYa sea que busques orientación\, apoyo o simplemente un lugar para conectarte con otros que entienden tu camino\, TMA Adelante! está aquí para ayudarte. Las reuniones se realizan cada dos meses\, brindando una oportunidad constante para interactuar con otros que comparten el mismo idioma y experiencia. \n¿Cuándo?El tercer jueves de cada dos meses a las:5:00 PM ET | 4:00 PM CT | 3:00 PM MT | 2:00 PM PT \nÚnete a nosotros y sé parte de esta red dinámica y solidaria mientras avanzamos juntos. Esperamos darte la bienvenida a TMA Adelante! Grupo de Afinidad. \n\n \n 
URL:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20/2025-12-18/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/06/TMA-Adelante.png
ORGANIZER;CN="Veronica Fatura":MAILTO:Fatura@myositis.org
LOCATION:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20/2025-12-18/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251218T183000
DTEND;TZID=America/Chicago:20251218T200000
DTSTAMP:20251022T060248
CREATED:20250605T143655Z
LAST-MODIFIED:20250605T204516Z
UID:10000998-1766082600-1766088000@www.myositis.org
SUMMARY:TMA Missouri and Illinois Group Meeting
DESCRIPTION:Register Today \nJoin the TMA Missouri & Illinois Myositis Support Group: A Community for Myositis Warriors \nThe TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every three months on the third Thursday at 6:30 PM CT\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nEvery 3 months on the third Thursday at:\n6:30 PM CT \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-missouri-and-illinois-group-meeting-5/
LOCATION:https://www.myositis.org/event/tma-missouri-and-illinois-group-meeting-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251219T170000
DTEND;TZID=America/Los_Angeles:20251219T183000
DTSTAMP:20251022T060248
CREATED:20250605T143747Z
LAST-MODIFIED:20250731T182943Z
UID:10001568-1766163600-1766169000@www.myositis.org
SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-12-19/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-12-19/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251220T130000
DTEND;TZID=America/New_York:20251220T143000
DTSTAMP:20251022T060248
CREATED:20250605T143718Z
LAST-MODIFIED:20250605T204535Z
UID:10001096-1766235600-1766241000@www.myositis.org
SUMMARY:TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group: A Community for Myositis Warriors \nThe TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland\, Delaware\, District of Columbia\, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nThird Saturday of every other month at:\n1:00 PM ET \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-md-de-dc-and-northern-virginia-myositis-support-group-meeting-7/
LOCATION:https://www.myositis.org/event/tma-md-de-dc-and-northern-virginia-myositis-support-group-meeting-7/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251227T110000
DTEND;TZID=America/Chicago:20251227T133000
DTSTAMP:20251022T060248
CREATED:20250605T143728Z
LAST-MODIFIED:20250610T223216Z
UID:10001142-1766833200-1766842200@www.myositis.org
SUMMARY:TMA Wisconsin Myositis Support Group Meeting
DESCRIPTION:It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort of social connection can also improve both physical and mental well-being. Even if you are currently in a good place managing your myositis\, consider joining. You can be an inspiration and source of strength for others! TMA Wisconsin meets on the last Saturday of every month starting in February of each year. \nPlease register here
URL:https://www.myositis.org/event/tma-wisconsin-myositis-support-group-meeting-17/
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2023/12/Wisconsin-1.png
LOCATION:https://www.myositis.org/event/tma-wisconsin-myositis-support-group-meeting-17/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260101T183000
DTEND;TZID=America/New_York:20260101T203000
DTSTAMP:20251022T060248
CREATED:20250605T143743Z
LAST-MODIFIED:20250904T194239Z
UID:10001508-1767292200-1767299400@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2026-01-01/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/TMA-WOCAG-WEBSITE-BANNER.jpg
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2026-01-01/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260103T130000
DTEND;TZID=America/New_York:20260103T143000
DTSTAMP:20251022T060248
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001752-1767445200-1767450600@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2026-01-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2026-01-03/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260103T130000
DTEND;TZID=America/New_York:20260103T143000
DTSTAMP:20251022T060248
CREATED:20250801T201217Z
LAST-MODIFIED:20250801T201324Z
UID:10001692-1767445200-1767450600@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2026-01-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/03/Nationwide-3-1.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260107T200000
DTEND;TZID=America/New_York:20260107T213000
DTSTAMP:20251022T060248
CREATED:20250605T143731Z
LAST-MODIFIED:20250724T235209Z
UID:10001331-1767816000-1767821400@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda will receive the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2026-01-07/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
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END:VCALENDAR