BEGIN:VCALENDAR VERSION:2.0 PRODID:-//The Myositis Association - ECPv6.15.8//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:The Myositis Association X-ORIGINAL-URL:https://www.myositis.org X-WR-CALDESC:Events for The Myositis Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Denver BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20240310T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20241103T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20250309T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20251102T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20260308T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20261101T080000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20240310T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20241103T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20250309T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20251102T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20260308T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20261101T070000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Los_Angeles BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20240310T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20241103T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20250309T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20251102T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20260308T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20261101T090000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20251021T120000 DTEND;TZID=America/New_York:20251021T133000 DTSTAMP:20251022T060243 CREATED:20250731T233534Z LAST-MODIFIED:20251008T164904Z UID:10001626-1761048000-1761053400@www.myositis.org SUMMARY:TMA WomenwithIBM Affinity Group Meeting DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \nRegister here. URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group-meeting/2025-10-21/ LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2 CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/Women-with-IBM-General-Flyer-2023.png ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Denver:20251018T130000 DTEND;TZID=America/Denver:20251018T150000 DTSTAMP:20251022T060243 CREATED:20250605T143719Z LAST-MODIFIED:20251022T021331Z UID:10001100-1760792400-1760799600@www.myositis.org SUMMARY:TMA Idaho\, Wyoming & Utah Myositis Support Group Meeting DESCRIPTION:Register Here \nJoin the TMA ID\, WY & UT Myositis Support Group: A Community for Myositis Warriors \nThe TMA ID\, WY & UT Myositis Support Group is a welcoming space for individuals living with myositis in the Idaho\, Wyoming and Utah states. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nThird Saturday of every other month at:\n1:00 PM ET \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey! URL:https://www.myositis.org/event/tma-idaho-wyoming-utah-myositis-support-group-meeting-4/ LOCATION:https://www.myositis.org/event/tma-idaho-wyoming-utah-myositis-support-group-meeting-4/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251018T130000 DTEND;TZID=America/New_York:20251018T143000 DTSTAMP:20251022T060243 CREATED:20250605T143718Z LAST-MODIFIED:20250605T202952Z UID:10001095-1760792400-1760797800@www.myositis.org SUMMARY:TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group Meeting DESCRIPTION:Register Here \nJoin the TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group: A Community for Myositis Warriors \nThe TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland\, Delaware\, District of Columbia\, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nThird Saturday of every other month at:\n1:00 PM ET \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey! URL:https://www.myositis.org/event/tma-md-de-dc-and-northern-virginia-myositis-support-group-meeting-6/ LOCATION:https://www.myositis.org/event/tma-md-de-dc-and-northern-virginia-myositis-support-group-meeting-6/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20251017T180000 DTEND;TZID=America/Chicago:20251017T210000 DTSTAMP:20251022T060243 CREATED:20250605T143753Z LAST-MODIFIED:20250605T202843Z UID:10001250-1760724000-1760734800@www.myositis.org SUMMARY:Second Annual Meredith C. Thomas Trivia Night Fundraiser (in person event) DESCRIPTION:Registration details coming soon!  \n\n\n\nIn partnership with the Thomas family\, TMA is honored to offer the Meredith C. Thomas Memorial Fellowship\, funding grants for early-career researchers and clinicians focused on learning more about how best to treat antisynthetase syndrome and interstitial lung disease. Meredith Thomas was diagnosed with antisynthetase syndrome and interstitial lung disease and passed away at age 33 in November 2023. In her honor\, her family created Meredith’s Legacy. Learn more and donate now!  \n\n\n\n  URL:https://www.myositis.org/event/second-annual-meredith-c-thomas-trivia-night-fundraiser-in-person-event/ LOCATION:Arrowhead Golf Club\, 26W151 Butterfield Rd.\, Wheaton\, IL\, 60189\, United States END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20251017T170000 DTEND;TZID=America/Los_Angeles:20251017T183000 DTSTAMP:20251022T060243 CREATED:20250605T143747Z LAST-MODIFIED:20250731T182943Z UID:10001566-1760720400-1760725800@www.myositis.org SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n  URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-10-17/ LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-10-17/ CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251016T170000 DTEND;TZID=America/New_York:20251016T183000 DTSTAMP:20251022T060243 CREATED:20250605T143730Z LAST-MODIFIED:20250714T182448Z UID:10001268-1760634000-1760639400@www.myositis.org SUMMARY:TMA Adelante! Un grupo de apoyo sobre miositis para hispanohablantes DESCRIPTION:Registrese\n\n \n\nÚnete a TMA Adelante! – Una Comunidad de Habla Hispana Avanzando Juntos \n¡Adelante! es el primer grupo de afinidad de TMA diseñado para personas de habla hispana que viven con miositis y sus cuidadores. Fundado bajo la creencia de que\, a pesar de los desafíos de la enfermedad crónica\, todos podemos seguir avanzando\, este grupo ofrece un espacio de apoyo para hispanohablantes de todo el mundo para conectarse\, compartir experiencias y encontrar fortaleza en la comunidad. \nYa sea que busques orientación\, apoyo o simplemente un lugar para conectarte con otros que entienden tu camino\, TMA Adelante! está aquí para ayudarte. Las reuniones se realizan cada dos meses\, brindando una oportunidad constante para interactuar con otros que comparten el mismo idioma y experiencia. \n¿Cuándo?El tercer jueves de cada dos meses a las:5:00 PM ET | 4:00 PM CT | 3:00 PM MT | 2:00 PM PT \nÚnete a nosotros y sé parte de esta red dinámica y solidaria mientras avanzamos juntos. Esperamos darte la bienvenida a TMA Adelante! Grupo de Afinidad. \n\n \n  URL:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20/2025-10-16/ LOCATION:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20/2025-10-16/ CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/06/TMA-Adelante.png ORGANIZER;CN="Veronica Fatura":MAILTO:Fatura@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251016T170000 DTEND;TZID=America/New_York:20251016T183000 DTSTAMP:20251022T060243 CREATED:20250605T143730Z LAST-MODIFIED:20250605T202442Z UID:10001149-1760634000-1760639400@www.myositis.org SUMMARY:TMA Adelante! Un grupo de apoyo sobre miositis para hispanohablantes DESCRIPTION:Registrese\n\n \n\nÚnete a TMA Adelante! – Una Comunidad de Habla Hispana Avanzando Juntos \n¡Adelante! es el primer grupo de afinidad de TMA diseñado para personas de habla hispana que viven con miositis y sus cuidadores. Fundado bajo la creencia de que\, a pesar de los desafíos de la enfermedad crónica\, todos podemos seguir avanzando\, este grupo ofrece un espacio de apoyo para hispanohablantes de todo el mundo para conectarse\, compartir experiencias y encontrar fortaleza en la comunidad. \nYa sea que busques orientación\, apoyo o simplemente un lugar para conectarte con otros que entienden tu camino\, TMA Adelante! está aquí para ayudarte. Las reuniones se realizan cada dos meses\, brindando una oportunidad constante para interactuar con otros que comparten el mismo idioma y experiencia. \n¿Cuándo?El tercer jueves de cada dos meses a las:5:00 PM ET | 4:00 PM CT | 3:00 PM MT | 2:00 PM PT \nÚnete a nosotros y sé parte de esta red dinámica y solidaria mientras avanzamos juntos. Esperamos darte la bienvenida a TMA Adelante! Grupo de Afinidad. \n\n \n  URL:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-21/ LOCATION:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-21/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251015T120000 DTEND;TZID=America/New_York:20251015T130000 DTSTAMP:20251022T060243 CREATED:20250918T040347Z LAST-MODIFIED:20250918T040347Z UID:10001892-1760529600-1760533200@www.myositis.org SUMMARY:Understanding Clinical Trials DESCRIPTION:Register Here \nClinical trials are conducted to evaluate the safety\, efficacy\, and outcomes of medical interventions to ensure that treatments brought to market are based on robust evidence and provide benefits to patients. This session will explore lessons from history (both good and bad)\, global standards for clinical studies\, the drug development process\, and what it means to be a participant in a clinical study. Thank you to our webinar sponsor AstraZeneca. URL:https://www.myositis.org/event/understanding-clinical-trials/ LOCATION:https://us02web.zoom.us/webinar/register/WN_xTX6tWlTSBCGEpgJcj-zLQ CATEGORIES:Webinar ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/09/AstraZeneca.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20251011T130000 DTEND;TZID=America/Chicago:20251011T150000 DTSTAMP:20251022T060243 CREATED:20250605T143739Z LAST-MODIFIED:20250805T185747Z UID:10001185-1760187600-1760194800@www.myositis.org SUMMARY:TMA Nebraska Myositis Support Group Meeting (In-person) DESCRIPTION:TMA Nebraska Myositis Support Group meets quarterly in-person on the second Saturday from 1-3 pm CT (January\, April\, July\, October) at Zion Lutheran Church\, 14205 Ida St\, Omaha\, NE 68142. URL:https://www.myositis.org/event/tma-nebraska-myositis-support-group-meeting-in-person-10/2025-10-11/ LOCATION:Zion Lutheran Church\, 14205 Ida St\, Omaha\, 68142\, United States CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Nebraska.jpg ORGANIZER;CN="Laura Deardoff":MAILTO:Deardoff@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Denver:20251011T120000 DTEND;TZID=America/Denver:20251011T133000 DTSTAMP:20251022T060243 CREATED:20250605T143706Z LAST-MODIFIED:20250605T201249Z UID:10001046-1760184000-1760189400@www.myositis.org SUMMARY:TMA Colorado Myositis Support Group Meeting DESCRIPTION:TMA Colorado Myositis Support Group has reactivated and meets on the second Saturday of each month at noon Mountain Time! \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming \nAnyone can join his meetings\, Colorado resident or not. The first meeting will be October 12 at noon MT and you can register here! \n  URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-13/ LOCATION:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-13/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251010T120000 DTEND;TZID=America/New_York:20251010T140000 DTSTAMP:20251022T060243 CREATED:20250605T143735Z LAST-MODIFIED:20250605T201202Z UID:10001170-1760097600-1760104800@www.myositis.org SUMMARY:New Member Orientation DESCRIPTION:Open to all regardless how long ago you joined TMA! Living with myositis can be challenging\, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know\, understand\, and share your new normal. Connect with people like you\, connect with resources you need\, connect with global myositis experts – connect with TMA!\nFriday\, October 10\, 2025 | 9 AM PT | 10 AM MT | 11 AM CT | 12 PM ET \nRegister Here \n \n\n  URL:https://www.myositis.org/event/new-member-orientation-8/ LOCATION:https://www.myositis.org/event/new-member-orientation-8/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251008T133000 DTEND;TZID=America/New_York:20251008T153000 DTSTAMP:20251022T060243 CREATED:20250605T143711Z LAST-MODIFIED:20250605T201130Z UID:10001064-1759930200-1759937400@www.myositis.org SUMMARY:TMA Michigan Myositis Support Group Meeting DESCRIPTION:Register Here URL:https://www.myositis.org/event/tma-michigan-myositis-support-group-meeting-12/ LOCATION:https://www.myositis.org/event/tma-michigan-myositis-support-group-meeting-12/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20251007T180000 DTEND;TZID=America/Chicago:20251007T200000 DTSTAMP:20251022T060243 CREATED:20250605T143721Z LAST-MODIFIED:20250805T180202Z UID:10001807-1759860000-1759867200@www.myositis.org SUMMARY:TMA Minnesota Myositis Support Group Meeting DESCRIPTION:Register Here \nJoin the TMA Minnesota Myositis Support Group: Connect\, Share\, and Find Support \nThe TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect\, share experiences\, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT\, this group provides a valuable opportunity to engage with others who truly understand the challenges of living with myositis. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, offer resources\, and build a sense of community. By sharing stories and learning from each other\, you’ll gain valuable insights and feel empowered to navigate your myositis journey with support from others who understand. \nWhen?\nFirst Tuesday of every two months at:\n6:00 PM CT \nJoin us to decrease loneliness\, access helpful resources\, and find strength in the power of community. We look forward to connecting with you! \nRegister Here URL:https://www.myositis.org/event/tma-minnesota-myositis-support-group-4/2025-10-07/ LOCATION:https://www.myositis.org/event/tma-minnesota-myositis-support-group-4/2025-10-07/ CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Minnesota.jpg ORGANIZER;CN="Lindsay Guentzel":MAILTO:Guentzel@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20251007T180000 DTEND;TZID=America/Chicago:20251007T200000 DTSTAMP:20251022T060243 CREATED:20250605T143721Z LAST-MODIFIED:20250610T225210Z UID:10001110-1759860000-1759867200@www.myositis.org SUMMARY:TMA Minnesota Myositis Support Group DESCRIPTION:Register Here \nJoin the TMA Minnesota Myositis Support Group: Connect\, Share\, and Find Support \nThe TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect\, share experiences\, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT\, this group provides a valuable opportunity to engage with others who truly understand the challenges of living with myositis. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, offer resources\, and build a sense of community. By sharing stories and learning from each other\, you’ll gain valuable insights and feel empowered to navigate your myositis journey with support from others who understand. \nWhen?\nFirst Tuesday of every two months at:\n6:00 PM CT \nJoin us to decrease loneliness\, access helpful resources\, and find strength in the power of community. We look forward to connecting with you! URL:https://www.myositis.org/event/tma-minnesota-myositis-support-group-5/ LOCATION:https://www.myositis.org/event/tma-minnesota-myositis-support-group-5/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251004T130000 DTEND;TZID=America/New_York:20251004T143000 DTSTAMP:20251022T060243 CREATED:20250801T201217Z LAST-MODIFIED:20250801T201324Z UID:10001689-1759582800-1759588200@www.myositis.org SUMMARY:TMA Worldwide Myositis Support by Diagnosis DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2025-10-04/ LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/03/Nationwide-3-1.png ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251004T130000 DTEND;TZID=America/New_York:20251004T143000 DTSTAMP:20251022T060243 CREATED:20250605T143744Z LAST-MODIFIED:20250801T204659Z UID:10001749-1759582800-1759588200@www.myositis.org SUMMARY:TMA Care Partner Affinity Group Meeting DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n  URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-10-04/ LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-10-04/ CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251003T120000 DTEND;TZID=America/New_York:20251003T133000 DTSTAMP:20251022T060243 CREATED:20250826T150146Z LAST-MODIFIED:20250826T150146Z UID:10001890-1759492800-1759498200@www.myositis.org SUMMARY:Virtual Conference Reunion & Staying Acquainted DESCRIPTION:Want to keep the MyoCon momentum going or just want to connect with TMA staff\, special guests and fellow attendees after our time together in Dallas? \nPlease join this conference reunion that will help you stay connected with your new friends! \nThis 30 minute session will be followed by an opportunity to get to know fellow conference attendees in breakout rooms by diagnosis. Breakout rooms will last for an hour and are available for IBM\, DM\, IMNM\, ASyS\, PM\, and Care Partners. \n Join Reunion & Staying Acquainted on Oct. 3 at 12 PM ET URL:https://www.myositis.org/event/virtual-conference-reunion-staying-acquainted/ LOCATION:https://us02web.zoom.us/j/82606903682 CATEGORIES:Conferences & Summits ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Virtual-Conference-Reunion.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251003T120000 DTEND;TZID=America/New_York:20251003T133000 DTSTAMP:20251022T060243 CREATED:20250809T000612Z LAST-MODIFIED:20251001T162817Z UID:10001880-1759492800-1759498200@www.myositis.org SUMMARY:TMA Meet & Greet Leadership Series: From MyoCon to MyoCommunity DESCRIPTION:Register Here \nJoin us for a special MyoCon Reunion edition of TMA’s Meet & Greet Leadership Series. Meet & Greet sessions let you meet some of the important people behind the scenes at TMA. These are fun\, low-key interactive conversations that connect you more closely with the organization and our mission. This time\, we’ll reconnect with MyoCon friends and stay acquainted through breakout rooms organized by diagnosis. URL:https://www.myositis.org/event/tma-meet-greet-leadership-series-from-myocon-to-myocommunity/ LOCATION:https://us02web.zoom.us/meeting/register/bTE-z2vFTmKHChG_Holvag CATEGORIES:Community Meetups END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251002T183000 DTEND;TZID=America/New_York:20251002T203000 DTSTAMP:20251022T060243 CREATED:20250605T143743Z LAST-MODIFIED:20250904T194239Z UID:10001505-1759429800-1759437000@www.myositis.org SUMMARY:TMA Women Of Color Affinity Group Meeting DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n      \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia. URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-10-02/ LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-10-02/ CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/TMA-WOCAG-WEBSITE-BANNER.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251001T200000 DTEND;TZID=America/New_York:20251001T213000 DTSTAMP:20251022T060243 CREATED:20250605T143731Z LAST-MODIFIED:20250724T235209Z UID:10001328-1759348800-1759354200@www.myositis.org SUMMARY:TMA Flying Solo Affinity Group Meeting DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda will receive the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact. URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2025-10-01/ LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250927T103000 DTEND;TZID=America/New_York:20250927T113000 DTSTAMP:20251022T060243 CREATED:20250725T165340Z LAST-MODIFIED:20250821T191502Z UID:10001387-1758969000-1758972600@www.myositis.org SUMMARY:TMA Georgia Myositis Support Group Meeting DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org. URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2025-09-27/ LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20250927T100000 DTEND;TZID=America/Chicago:20250927T113000 DTSTAMP:20251022T060243 CREATED:20250605T143746Z LAST-MODIFIED:20250725T234234Z UID:10001446-1758967200-1758972600@www.myositis.org SUMMARY:TMA Northeast Texas Myositis Support Group Meeting DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Melissa Rumpf \n\n\n\n\n\n \nHello\, my name is Melissa Rumpf and I was diagnosed with IBM in 2017.  I feel very fortunate to have found TMA early in my diagnosis as they have been instrumental in helping me navigate this disease.   \n\n\n\nI have attended three (3) in-person TMA International Patient Conferences and many zoom conferences and meetings throughout the years (can’t wait for Dallas this year)!  Meeting other myositis patients and being able to share information\, our struggles and our positives with each other has been life changing for me.  I have learned so much from TMA and others weathering the ups and downs of myositis.  \n\n\n\nPrior to medically retiring in 2019\, I was a Communications Supervisor with the Las Vegas Police Department where I spent 28 years helping others.  So being part of TMA and helping others is a strong passion of mine.   \n\n\n\nMy husband is my “Rock” who helps keep me going.  We exercise 3 times weekly to keep my mobility.  My passion is traveling so we take vacations as often as we can – it keeps me going mentally and physically! \n\n\n\n“The question isn’t who is going to let me; it’s who is going to stop me”.  We all must keep up the fight! \n\n\n\nI’m looking forward to meeting you at our TMA Northeast Texas meetings! \n\n\n\nSincerely\, Melissa \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n  URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-09-27/ LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-09-27/ CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20250925T183000 DTEND;TZID=America/Chicago:20250925T200000 DTSTAMP:20251022T060243 CREATED:20250605T143655Z LAST-MODIFIED:20250829T215349Z UID:10000997-1758825000-1758830400@www.myositis.org SUMMARY:TMA Missouri and Illinois Group Meeting DESCRIPTION:Register Today \nJoin the TMA Missouri & Illinois Myositis Support Group: A Community for Myositis Warriors \nThe TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every three months on the third Thursday at 6:30 PM CT\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nEvery 3 months on the third Thursday at:\n6:30 PM CT \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey! URL:https://www.myositis.org/event/tma-missouri-and-illinois-group-meeting-4/ LOCATION:https://www.myositis.org/event/tma-missouri-and-illinois-group-meeting-4/ CATEGORIES:Support or Affinity Group Meeting END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250925T180000 DTEND;TZID=America/New_York:20250925T190000 DTSTAMP:20251022T060243 CREATED:20250605T143727Z LAST-MODIFIED:20250605T200640Z UID:10001135-1758823200-1758826800@www.myositis.org SUMMARY:TMA VA\, WV\, NC Northeast Myositis Support Group Meeting DESCRIPTION:Join the TMA VA\, WV\, NC Northeast Myositis Support Group: Connect\, Share\, and Find Strength \nIt’s not unusual to feel isolated and alone with a disease that many people have never heard of or truly understand. Being part of a myositis support group is an important way to share these feelings with others who truly know what you’re going through. Research shows that social connection can not only reduce feelings of isolation but also improve both physical and mental well-being. \nThe TMA VA\, WV\, NC Northeast Myositis Support Group meets on the fourth Thursday of each month at 6:00 PM ET\, offering a space for individuals living with myositis to connect\, share their experiences\, and find support. Whether you’re newly diagnosed or have been managing myositis for years\, this group provides a supportive community where you can learn from others\, gain helpful resources\, and offer encouragement. \nEven if you’re currently managing your myositis well\, consider joining. You can be an inspiration and a source of strength for others who are still navigating the challenges of living with myositis. This group is a reminder that you are not alone. \nWhen?Fourth Thursday of every month at:6:00 PM ET \nWhere?Virtual meeting details provided upon registration \nJoin us to connect\, learn\, and empower yourself and others on the myositis journey. We look forward to welcoming you! \n\nRegister Here URL:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-28/ LOCATION:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-28/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250921T200000 DTEND;TZID=America/New_York:20250922T080000 DTSTAMP:20251022T060243 CREATED:20250807T174003Z LAST-MODIFIED:20250807T180155Z UID:10001877-1758484800-1758528000@www.myositis.org SUMMARY:World Myositis Day: Illuminations DESCRIPTION:In recognition of World Myositis Day on September 21\, Myositis Canada has arranged to have Niagara Falls (American and Canadian sides) illuminated in the 4 primary colors of the WMD logo (red\, blue\, yellow\, green). You can view the showing on the falls webcam from 10:00-10:15pm ET: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str \n\n\n\nThe CN Tower in Toronto will also be illuminated that night. You can view the showing on the CN Tower webcam from sunset to sunrise: https://www.cntower.ca/live-views URL:https://www.myositis.org/event/world-myositis-day-illuminations/ LOCATION:MI CATEGORIES:Commemorative ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2024/04/World-Myositis-Day.png ORGANIZER;CN="Myositis Canada":MAILTO:president@myositis.ca END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250921T101500 DTEND;TZID=America/New_York:20250921T113000 DTSTAMP:20251022T060243 CREATED:20250826T144500Z LAST-MODIFIED:20250909T140019Z UID:10001889-1758449700-1758454200@www.myositis.org SUMMARY:World Myositis Day Closing Keynote Speaker DESCRIPTION:10:15 – 11:30am ET (9:15am CT in Dallas) \n“Living Well With Autoimmune Diseases: A Rheumatologist’s Guide for Taking Charge of your Health” Live from MyoCon in Dallas! \nAnyone across the globe can connect at no cost\, thanks to our sponsors AstraZeneca and Cabaletta Bio. \nPresented by: Julius Birnbaum\, MD\, MHS\, Associate Professor\, Division of Rheumatology\, University of Pittsburgh Medical Center; Division Chief of Rheumatology\, UPMC Mercy Hospital \n Join Closing Keynote on Sept. 21 at 10:15 AM ET (9:15 AM CT) URL:https://www.myositis.org/event/world-myositis-day-closing-keynote-speaker/ LOCATION:https://www.facebook.com/Myositis/ CATEGORIES:Conferences & Summits ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Closing-Keynote-Speaker.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250921 DTEND;VALUE=DATE:20250922 DTSTAMP:20251022T060243 CREATED:20250605T143729Z LAST-MODIFIED:20250605T200544Z UID:10001145-1758412800-1758499199@www.myositis.org SUMMARY:Observing World Myositis Day DESCRIPTION:How will you observe World Myositis Day? Let us know at TMA@myositis.org!\n\n\n\n\n\n\n\nTMA proudly partners with worldwide patient advocacy organizations to drive myositis awareness on World Myositis Day. The next World Myositis Day is Saturday\, September 21\, 2024. \nWorld Myositis Day was adopted in 2023\, building upon TMA’s efforts to create a National Myositis Awareness Day in the US. \n\n\n\n\nSeptember is an important month for TMA\, which has hosted the International Annual Patient Conference annually in September since 1995. On September 25\, 2006\, the US House of Representatives approved the goals and ideals of a “National Myositis Awareness Day” to be observed on September 21. The proclamation endorsing National Myositis Awareness Day capped a years-long effort by TMA. \nLearn more here. \n\n\n  URL:https://www.myositis.org/event/observing-world-myositis-day-2/ LOCATION:MI END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20250919T170000 DTEND;TZID=America/Los_Angeles:20250919T183000 DTSTAMP:20251022T060243 CREATED:20250605T143747Z LAST-MODIFIED:20250731T182943Z UID:10001565-1758301200-1758306600@www.myositis.org SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n  URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-09-19/ LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-09-19/ CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250918T170000 DTEND;TZID=America/New_York:20250918T183000 DTSTAMP:20251022T060243 CREATED:20250605T143730Z LAST-MODIFIED:20250714T182448Z UID:10001267-1758214800-1758220200@www.myositis.org SUMMARY:TMA Adelante! Un grupo de apoyo sobre miositis para hispanohablantes DESCRIPTION:Registrese\n\n \n\nÚnete a TMA Adelante! – Una Comunidad de Habla Hispana Avanzando Juntos \n¡Adelante! es el primer grupo de afinidad de TMA diseñado para personas de habla hispana que viven con miositis y sus cuidadores. Fundado bajo la creencia de que\, a pesar de los desafíos de la enfermedad crónica\, todos podemos seguir avanzando\, este grupo ofrece un espacio de apoyo para hispanohablantes de todo el mundo para conectarse\, compartir experiencias y encontrar fortaleza en la comunidad. \nYa sea que busques orientación\, apoyo o simplemente un lugar para conectarte con otros que entienden tu camino\, TMA Adelante! está aquí para ayudarte. Las reuniones se realizan cada dos meses\, brindando una oportunidad constante para interactuar con otros que comparten el mismo idioma y experiencia. \n¿Cuándo?El tercer jueves de cada dos meses a las:5:00 PM ET | 4:00 PM CT | 3:00 PM MT | 2:00 PM PT \nÚnete a nosotros y sé parte de esta red dinámica y solidaria mientras avanzamos juntos. Esperamos darte la bienvenida a TMA Adelante! Grupo de Afinidad. \n\n \n  URL:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20/2025-09-18/ LOCATION:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20/2025-09-18/ CATEGORIES:Support or Affinity Group Meeting ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/06/TMA-Adelante.png ORGANIZER;CN="Veronica Fatura":MAILTO:Fatura@myositis.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250918 DTEND;VALUE=DATE:20250922 DTSTAMP:20251022T060243 CREATED:20250605T143729Z LAST-MODIFIED:20250917T125844Z UID:10001144-1758153600-1758499199@www.myositis.org SUMMARY:2025 International Annual Patient Conference in Dallas\, TX DESCRIPTION:Save the Date for TMA’s 2025 International Annual Patient Conference in Dallas\, TX! \nWe’re thrilled to announce that TMA’s 2025 International Annual Patient Conference will take place in Dallas\, Texas\, from September 18-21\, 2025 at the Sheraton Dallas Hotel. Mark your calendars – you won’t want to miss this incredible event\, which will conclude on World Myositis Day\, a celebration you’ll definitely want to be part of! \nRegistration opens April 1\, 2025\, so start planning your trip today! Keep an eye on our monthly newsletter for emerging details\, including the opening of scholarship applications. \nAbout TMA’s Conference:\nSince 1995\, TMA has hosted our International Annual Patient Conference\, bringing together myositis specialists\, expert presenters\, and the myositis community for an unforgettable experience. The conference offers dozens of educational workshops\, research presentations\, content for care partners\, clinical trial information\, and much more – all aimed at empowering you with the knowledge to manage myositis and live your best life. \nBut the conference isn’t just about learning – it’s also about connecting. For many\, the opportunity to meet others who understand what it’s like to live with myositis is life-changing. The chance to share stories\, form lasting friendships\, and find community is one of the key reasons attendees return year after year. \nThe conference will also feature the Heroes In The Fight Awards and Gala\, a special highlight that honors those making a difference in the myositis community. \nOfficial conference hashtag: #IAPC2025 \nThank you to all who attended our 2024 International Annual Patient Conference in Baltimore! If you weren’t able to join us\, recordings of the event are available for purchase here. \nDon’t miss out on this invaluable opportunity to learn\, connect\, and celebrate! Stay tuned for more details and register starting April 1\, 2025. We look forward to seeing you in Dallas! URL:https://www.myositis.org/event/2025-international-annual-patient-conference-in-dallas-tx/ LOCATION:Sheraton Dallas\, 400 Olive St\, Dallas\, TX\, 75201\, United States ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/09/2025-MyoCon-See-You-There-940.jpg END:VEVENT END:VCALENDAR