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X-WR-CALDESC:Events for The Myositis Association
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DTSTART;TZID=America/New_York:20251015T120000
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DTSTAMP:20251022T062149
CREATED:20250918T040347Z
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SUMMARY:Understanding Clinical Trials
DESCRIPTION:Register Here \nClinical trials are conducted to evaluate the safety\, efficacy\, and outcomes of medical interventions to ensure that treatments brought to market are based on robust evidence and provide benefits to patients. This session will explore lessons from history (both good and bad)\, global standards for clinical studies\, the drug development process\, and what it means to be a participant in a clinical study. Thank you to our webinar sponsor AstraZeneca.
URL:https://www.myositis.org/event/understanding-clinical-trials/
CATEGORIES:Webinar
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LOCATION:https://us02web.zoom.us/webinar/register/WN_xTX6tWlTSBCGEpgJcj-zLQ
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T120000
DTEND;TZID=America/New_York:20250908T120000
DTSTAMP:20251022T062149
CREATED:20250808T190505Z
LAST-MODIFIED:20250819T164930Z
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SUMMARY:Ask the Expert featuring Astia Allenzara\, MD\, MCSR
DESCRIPTION:Register Here \n💬 Your questions\, answered by a myositis expert! \nAsk the Expert with Dr. Astia AllenzaraJoin us on Monday\, September 8 at 12:00 PM ET / 6:00 PM CEST for a special Ask the Expert session featuring Astia Allenzara\, MD\, MSCR\, an internist and rheumatologist at UNC Chapel Hill. Dr. Allenzara’s work focuses on improving care for people living with rare autoimmune diseases\, including myositis\, and advancing equitable access to treatment. \nAbout Ask the Expert:TMA’s Ask the Expert webinar series gives myositis patients and care partners direct access to world-renowned clinicians\, researchers\, and other specialists. Each session offers the latest information on myositis diagnosis\, treatment\, and day-to-day management\, followed by a Q&A where you can submit your questions in advance.
URL:https://www.myositis.org/event/ask-the-expert-featuring-astia-allenzara-md-mcsr/
CATEGORIES:Webinar
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LOCATION:https://us02web.zoom.us/webinar/register/WN_3QHq1saUTgeahqX0tTG4iQ
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DTSTART;TZID=America/New_York:20250819T120000
DTEND;TZID=America/New_York:20250819T130000
DTSTAMP:20251022T062149
CREATED:20250801T003944Z
LAST-MODIFIED:20250819T022413Z
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SUMMARY:TMA Ask the Expert: Cell Therapy Edition
DESCRIPTION:TMA’s Ask the Expert webinar series gives members of the myositis community direct access to leading experts in the field. Each session features a trusted medical professional who answers your questions about specific types of myositis\, treatment options\, research developments\, and disease management. August’s Ask the Expert webinar features Iazsmin Bauer Ventura\, MD\, a clinician and researcher specializing in neuromuscular disorders and regenerative medicine. In addition to her academic and clinical expertise\, Dr. Ventura is currently leading CAR-T clinical trials at the University of Chicago. Her work is helping to pave the way for new\, innovative treatment options for those living with myositis. Joining her is Satyajit Kosuri\, MD\, a medical oncologist specializing in hematology. Join us on Tuesday\, August 19 at 12:00 PM ET for an in-depth conversation on cell therapy for myositis\, including current clinical trials\, therapeutic potential\, and what patients should know about emerging treatments. Don’t miss this opportunity to ask your questions and learn from two experts at the forefront of innovative care. \nSponsored by TMA Corporate Advisory Council member Bristol Myers Squibb. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-ask-the-expert-cell-therapy-edition/
CATEGORIES:Webinar
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LOCATION:https://us02web.zoom.us/webinar/register/WN_QWdjl8iQSNWt4GcC3XALkw
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DTSTART;TZID=America/New_York:20250813T120000
DTEND;TZID=America/New_York:20250813T130000
DTSTAMP:20251022T062149
CREATED:20250801T003127Z
LAST-MODIFIED:20250801T003322Z
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SUMMARY:TMA Empowerment Clinic: From Diagnosis to Determined: Grace\, Grit\, and Getting Back Up
DESCRIPTION:Join TEDx speaker and founder of The disABLED Company™\, Alicia Polak\, for a powerful and uplifting Empowerment Clinic as she shares her personal journey with Inclusion Body Myositis. Through relatable stories\, moments of levity\, and lessons in self-advocacy\, Alicia will explore how a mindset rooted in being Able\, Authentic\, and Adaptive can transform the experience of chronic illness. This session is a celebration of resilience\, community\, and the power of choosing hope. \nTMA’s Empowerment Clinic Series\nThe Empowerment Clinic is a signature education and wellness series from The Myositis Association\, designed to improve the quality of life for people living with myositis and those who care for them.  \nRegister Here
URL:https://www.myositis.org/event/tma-empowerment-clinic-from-diagnosis-to-determined-grace-grit-and-getting-back-up/
CATEGORIES:Webinar
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LOCATION:https://us02web.zoom.us/webinar/register/WN_9LcV-QgbSEGyLioJ75tX8Q
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250807T120000
DTEND;TZID=America/New_York:20250807T130000
DTSTAMP:20251022T062149
CREATED:20250801T001757Z
LAST-MODIFIED:20250801T004522Z
UID:10001684-1754568000-1754571600@www.myositis.org
SUMMARY:TMA Myositis Research Insights Webinar featuring Dr. Julio Huapaya
DESCRIPTION:Join us for an insightful session with Julio Huapaya\, MD\, a critical care and pulmonary specialist affiliated with Johns Hopkins Medicine and the NIH Clinical Center. \nDr. Huapaya’s talk will dive into his cutting-edge research on myositis-associated interstitial lung disease (M‑ILD)\, focusing on: \n\nLongitudinal clinical features and outcomes in patients with anti‑synthetase syndrome autoantibodies\, based on Johns Hopkins’ long-term cohort studies \n\n\nAn overview of his contribution to managing lung involvement in myositis using azathioprine and mycophenolate mofetil to preserve lung function and reduce steroid dependence in M‑ILD patients\n\n\n\nHis recent work on autoantibody measurement with advanced testing methods\, funded by a two‑year $100K fellowship under the Myositis Association and Johns Hopkins ILD program \n\n\nBroader perspectives from his 2021 co-authored chapter\, “Myositis‑Associated Interstitial Lung Disease” in the Encyclopedia of Respiratory Medicine \n\nRegister Here
URL:https://www.myositis.org/event/tma-myositis-research-insights-webinar-featuring-dr-julio-huapaya/
CATEGORIES:Webinar
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LOCATION:https://us02web.zoom.us/webinar/register/WN_3K-z_z49R4qHSmulgmNPlw
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