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X-WR-CALNAME:The Myositis Association
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X-WR-CALDESC:Events for The Myositis Association
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DTSTART;TZID=America/New_York:20251023T120000
DTEND;TZID=America/New_York:20251023T130000
DTSTAMP:20251022T060405
CREATED:20250808T232532Z
LAST-MODIFIED:20250903T174247Z
UID:10001879-1761220800-1761224400@www.myositis.org
SUMMARY:Ask the Expert featuring Elie Naddaf\, MD
DESCRIPTION:Register now to reserve your spot! \n\n\n\n\n\n\n\nJoin us for an exclusive\, interactive session with neurologist Elie Naddaf\, MD\, a Mayo Clinic specialist in neuromuscular diseases and current member of TMA’s Medical Advisory Board. In this edition of our Ask the Expert series—designed to give the myositis community direct access to leading voices in diagnosis\, treatment\, research\, and disease management—you’ll get to submit your questions and gain insights straight from a trusted authority in the field. \nWhether you’re newly diagnosed\, managing for years\, caring for a loved one\, or advocating on behalf of others—this webinar empowers you with reliable\, specialist-backed information. Don’t miss out on this unique chance to connect\, clarify\, and learn.
URL:https://www.myositis.org/event/ask-the-expert-featuring-elie-naddaf-md/
LOCATION:https://us02web.zoom.us/webinar/register/WN_BeKVNb7PQ4yUxXsnpt7aNQ
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/OCT-2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251023T180000
DTEND;TZID=America/New_York:20251023T190000
DTSTAMP:20251022T060405
CREATED:20250605T143727Z
LAST-MODIFIED:20250605T203159Z
UID:10001136-1761242400-1761246000@www.myositis.org
SUMMARY:TMA VA\, WV\, NC Northeast Myositis Support Group Meeting
DESCRIPTION:Join the TMA VA\, WV\, NC Northeast Myositis Support Group: Connect\, Share\, and Find Strength \nIt’s not unusual to feel isolated and alone with a disease that many people have never heard of or truly understand. Being part of a myositis support group is an important way to share these feelings with others who truly know what you’re going through. Research shows that social connection can not only reduce feelings of isolation but also improve both physical and mental well-being. \nThe TMA VA\, WV\, NC Northeast Myositis Support Group meets on the fourth Thursday of each month at 6:00 PM ET\, offering a space for individuals living with myositis to connect\, share their experiences\, and find support. Whether you’re newly diagnosed or have been managing myositis for years\, this group provides a supportive community where you can learn from others\, gain helpful resources\, and offer encouragement. \nEven if you’re currently managing your myositis well\, consider joining. You can be an inspiration and a source of strength for others who are still navigating the challenges of living with myositis. This group is a reminder that you are not alone. \nWhen?Fourth Thursday of every month at:6:00 PM ET \nWhere?Virtual meeting details provided upon registration \nJoin us to connect\, learn\, and empower yourself and others on the myositis journey. We look forward to welcoming you! \n\nRegister Here
URL:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-29/
LOCATION:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-29/
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251024T130000
DTEND;TZID=America/Chicago:20251024T170000
DTSTAMP:20251022T060405
CREATED:20250825T195225Z
LAST-MODIFIED:20250825T214928Z
UID:10001885-1761310800-1761325200@www.myositis.org
SUMMARY:Myositis Collaborative Groups Summit (in-person)
DESCRIPTION:Please join TMA and Cure JM for the in-person Myositis Collaborative Groups Summit to learn about recent initiatives of IMACS\, iMyoS\, MCTC\, CARRA\, PReS JDM\, and MIHRA. Our aim is to allow members to share information\, learn more about research opportunities\, and enhance national and international collaborations.  \nView details\, agenda\, posters\, and registration.
URL:https://www.myositis.org/event/myositis-collaborative-groups-summit/
LOCATION:The Platform Conference Center\, 320 South Canal Street\, Chicago\, 60606\, United States
CATEGORIES:Clinician Education
ORGANIZER;CN="The Myositis Association":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251025T100000
DTEND;TZID=America/Chicago:20251025T113000
DTSTAMP:20251022T060405
CREATED:20250605T143746Z
LAST-MODIFIED:20250725T234234Z
UID:10001447-1761386400-1761391800@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Melissa Rumpf \n\n\n\n\n\n \nHello\, my name is Melissa Rumpf and I was diagnosed with IBM in 2017.  I feel very fortunate to have found TMA early in my diagnosis as they have been instrumental in helping me navigate this disease.   \n\n\n\nI have attended three (3) in-person TMA International Patient Conferences and many zoom conferences and meetings throughout the years (can’t wait for Dallas this year)!  Meeting other myositis patients and being able to share information\, our struggles and our positives with each other has been life changing for me.  I have learned so much from TMA and others weathering the ups and downs of myositis.  \n\n\n\nPrior to medically retiring in 2019\, I was a Communications Supervisor with the Las Vegas Police Department where I spent 28 years helping others.  So being part of TMA and helping others is a strong passion of mine.   \n\n\n\nMy husband is my “Rock” who helps keep me going.  We exercise 3 times weekly to keep my mobility.  My passion is traveling so we take vacations as often as we can – it keeps me going mentally and physically! \n\n\n\n“The question isn’t who is going to let me; it’s who is going to stop me”.  We all must keep up the fight! \n\n\n\nI’m looking forward to meeting you at our TMA Northeast Texas meetings! \n\n\n\nSincerely\, Melissa \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-10-25/
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-10-25/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251025T100000
DTEND;TZID=America/Los_Angeles:20251025T113000
DTSTAMP:20251022T060405
CREATED:20251013T173254Z
LAST-MODIFIED:20251013T173254Z
UID:10001898-1761386400-1761391800@www.myositis.org
SUMMARY:TMA Southern California Myositis Support Group
DESCRIPTION:Register Here
URL:https://www.myositis.org/event/tma-southern-california-myositis-support-group/
LOCATION:MI
CATEGORIES:Support or Affinity Group Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251025T103000
DTEND;TZID=America/New_York:20251025T113000
DTSTAMP:20251022T060405
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10001388-1761388200-1761391800@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2025-10-25/
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251025T110000
DTEND;TZID=America/New_York:20251025T130000
DTSTAMP:20251022T060405
CREATED:20251021T195732Z
LAST-MODIFIED:20251021T195732Z
UID:10001900-1761390000-1761397200@www.myositis.org
SUMMARY:TMA Michigan IBM Support Group Meeting (IN-PERSON)
DESCRIPTION:Join the TMA Michigan Inclusion Body Myositis (IBM) Support Group for an in-person meeting on Saturday\, October 25\, from 11:00 AM to 1:00 PM at the Grandville Public Library\, 4055 Maple St SW\, Grandville\, MI 49418. Connect with others living with IBM\, share experiences\, and find support within your community. \nAfter the meeting\, those who would like to continue the conversation are invited to join the group for lunch nearby (each person covers their own meal). \nFor more information\, contact Jim Mathews at jamathewa47@gmail.com or 616-638-1281.
URL:https://www.myositis.org/event/tma-michigan-ibm-support-group-meeting-in-person-2/
LOCATION:Grandville Public Library\, 4055 Maple Street SW\, Grandville\, MI\, 49418\, United States
ORGANIZER;CN="Deb Grutter":MAILTO:Grutter@myositis.org
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